Leah #pwME Lives in a small town by the sea, heart in the city. Life interrupted by chronic illness 🛌 #mecfs #fibro Anti poverty. Social justice. Classic + indie film. 🇦🇺 native flowers + birds. Vintage clothing + design.
1,207 followers 407 following 344 posts
view profile on Bluesky 
Govt that campaigned on transparency has killed whistleblowing reform, knackered the NACC and forces NDAs on anyone advocating legl reform. Hasn’t introduced a single useful reform in the area - or prosecuted a single serious corruption case - and now wants to cripple FOI too.
I’m sure this point has been made elsewhere but not only did they openly lie about how many recommendations were in the robodebt final report, the one they erased was to reform FOI and now they’re heading in the opposite direction. Surprise is not a feature of my reaction.
Meanjin Journal is 85 years old; older than the Sydney Opera House. Closing it down is cultural vandalism of the highest order, roughly equivalent to demolishing the above mentioned opera house. I am disgusted @meanjin.bsky.social
Just learned that the term 'cultural cringe' was coined by A.A. Philips in the pages of Meanjin in 1950. It's a familiar phenomenon in Aotearoa, but are we losing (or have we lost) our cultural cringe now? en.wikipedia.org/wiki/Cultura...
Modern conservatism is literally baby philosophy. I get what I want and I don't care what the costs are. There's no reason to take them seriously any more than you would debate an infant
I will never apologize for a post
The operator of a new public-private affordable housing complex in Melbourne has hit residents with a rent increase of 17 per cent less than a year after they moved in. www.abc.net.au/news/2025-09...
finally someone in Parliament said it. I am not the only one who noticed that Abbott-era bipartisan hysteria over Australians fighting with ISIS has until now been matched by complete crickets on Australians joining genocidal Israeli occupation forces. www.abc.net.au/news/2025-09...
From Boston, MA, USA Stellate Ganglion Block for the Management of Long COVID Symptoms: A Retrospective Cohort Study www.cureus.com/articles/370... Screenshot from latest Science for ME weekly update #LongCovid #PASC
There's more to come. This is not the final cost or end outcome
Yep, same. Sorry for the late reply. Was going to just not log on until later in the day, and ended up just not logging on at all 😄 Had a few a days off the socials, and news first thing. It's better!
That's a really good idea. I tend to look at the news/socials over breakfast and 1st coffee. Then get sucked into feeling like shit over the state of the world, rather than starting the day doing something. It's an easy thing to change. Thanks for the prompt 💛
1/2 While we are feeling outraged/impotent with the horror of wars in other countries... don't ignore our own backyard where unjust & racist attitudes rule. "the humanity of Aboriginal people is not valued as highly as the rest of the community,” #deathsInCustody www.abc.net.au/news/2025-09...
Every repost, every contribution, plants a seed of hope for my family and children.💔 Donate: gofund.me/6f2ca285
I think 182 year old research articles should be free I want to read about the man
"Remember: They are a cult that want journalists to help launder their image and legitimise their movement and beliefs. Above all – don't be fooled"
For me/cfs and Long Covid peeps, and the small blood clots theory:
Polish poster for KING KONG ESCAPES (1967)
...the extreme far right- actual neo-nazis- and the feast they will make of these culture wars is really depressing. Our leaders and journalists do not have the guts to deal with any of it.
With this year's election results, and the huge turn out for the pro-Palestinian marches, I was hopeful Australia may have been dodging *some* of the bullshit happening in the U.S and U.K right now. What happened yesterday dashed those hopes. Knowing our politicians and media will now court...
NEW: Australia's Future Fund increased its holdings in Israeli weapons manufacturer Elbit Systems by 469% in 2024, deepening Australia's financial ties with companies profiting from the Gaza genocide. www.deepcutnews.com/p/exclusive-...
😍🥖🥖
This is truly dangerous. After what happened in Porepunkah last week, the media should not be downplaying the threat of violent far right men in this country.
Yesterday, gov announced a measure to implement its one social security election commitment: will provide Services Australia the power to 'to waive social security debts that have been incurred as a result of domestic and family violence' ministers.dss.gov.au/media-releas...
A half billion dollars a year to give tax breaks to ghouls who are wrecking housing affordability. Great policy guys. www.theguardian.com/australia-ne...
Camp Sovereignty organisers said four people were taken to hospital after the incident, with one person in a critical condition with head injuries. Neo-Nazi figure Thomas Sewell was among the group of men clashing with Camp Sovereignty supporters. www.abc.net.au/news/2025-09...
Yeah so the nazis & flagwits rlly smashed the Camp this arv0. I reckon love & solidarity is rlly needed right now. t.co/LWqbdx7GDm
You don’t have to spend every second of your waking hours as a sick person trying to find a cure. Sure, prioritize your health, try new treatments, strive for better function & QOL. But it’s also okay to try to enjoy your life too, in any way you can. In fact, it’s radical & necessary. #LongCovid
Genocide Julian? Julian is “incandescent with rage” because he believes we should condone genocide. Australians can discern the difference between Australian Jews and Israel, we don’t need Julian to oversee us. #AusPol
Katter is not an “eccentric” and the media really needs to stop soft soaping him.
Beautiful 1860s Victorian butterfly, which was used to store small packets of sewing needles on the underside of the wings. This was a collaboration between a London-based drapers company and a sewing needle manufacturer. On exhibit at Tatter Blue, a Brooklyn textile museum. IG tatterbluelibrary
So now we have to spend a fortune moving the UN head office? Apparently it can’t be on US territory any more, because the teenagers Americans elected can’t comprehend the responsibility.
I just saw this for the first time and it really spoke to me. Meant a lot to see it in a museum. If I’m not mistaken it’s part of a series by Shannon Finnegan.
What are your favourite pieces of visual arts on disability / health ?
Being the only masker at a long COVID clinical trial 😐
Traji works very hard to make these videos to talk to people gofund.me/8bc2934b
Haya is only 17
This, from the Quakers, is a pretty good example of how to resist pressure from bigot lobbying groups. Effectively “we legally can allow trans people to use the loo, we morally should, and we tried it and nothing bad happened”
What's the best movie about journalism where they get all the little procedural details correct? The Paper and The Post are quite good in that respect I know people usually answer All the President's Men or Spotlight, but i'm wondering if there are some less well known ones that I'm missing
Anyone I know who has to deal with govt bureaucracy in their jobs, or works in a large organisation, loves/hates the Australian comedy 'Utopia'. Both loving and hating its accuracy.
Better Call Saul s2 gets discovery in a vibey way lawyers love Michael Clayton for a reason. not realism but it nails the amorality.
Mr McRae was also experiencing homelessness. He had been living in a friend's garage after he aged out of the foster system at 18. "We've tried to put him through housing, linked to home and certain accommodations but they all pushed him back," www.abc.net.au/news/2025-08...
"Fifty Years Beyond the Henderson Inquiry: Rethinking Poverty Measurement for Australia" open access issue onlinelibrary.wiley.com/toc/14678462...
It's party time - that's for the reminder @amyremeikis.bsky.social "It’s 50 years on from the establishment of the Henderson Poverty Line (the measure of income people need to live above poverty) we still don’t have official poverty measures! Cool, right?" #NobodyDeservesPoverty
www.starobserver.com.au/news/anti-tr...
This is the second transgender person playing sport targeted by Smith. Both were complete strangers to her. There was a player in a soccer team in Wingham who was harassed. A gang showed up to their games to harass them from the sidelines. Had to get an AVO out. What a hateful, garbage person.
“Leaving Gaza City and trying to flee to the south would be nothing less than a death sentence. For this reason, the clergy and nuns have decided to remain and continue to care for all those who will be in the compounds.“ Such courage. Hope is an action destituting violence of its power
This is....not good. Many of us with pain disorders and mcas/mcs don't tolerate anything but paracetamol.
I’ve said this before but I’m so glad we’re talking more openly about peri- and post-menopausal life in a way our elders didn’t (many reasons why, I know!) You feel out of control in mind, body, and spirit and it’s been very helpful for me to know this is, unfortunately, “normal”
Has anyone with #MECFS gotten a Stellate Ganglion Block? How did it go for you?
BREAKING: Hero whistleblower Richard Boyle walks FREE! After 7 years of hell for exposing ATO's brutal debt collection, he's received a good behaviour bond. Justice at last! But this travesty shows we urgently need whistleblower law reform & compensation for what he's endured
I know I join millions today who feel great relief that Richard Boyle avoided jail today but truth is he should NEVER have been prosecuted for protecting vulnerable taxpayers! We should learn the lesson of what Richard has gone through and fix the laws so it never happens again.
Whistleblower Richard Boyle avoids conviction and jail after revealing tax office’s unethical behaviour www.theguardian.com/australia-ne...
Gov announced it will waive 1.2 million small, accidental social security debts valued under $250. A new income apportionment resolution scheme will be established providing resolution payments up to $600 to those affected from 2003-2020 (will need to apply) ministers.dss.gov.au/media-releas...
Hanna is trying to keep it together for her whole family
The great-grandson of Jean Renoir owns a video store in Burbank.
Mapping cerebral blood flow in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and orthostatic intolerance (OI) https://translational-medicine.biomedcentral.com/articles/10.1186/s12967-025-06954-w "CBF (Cerebral Blood Flow) is reduced in ME/CFS […] [Original post on disabled.social]
Maryam Abu Daqqa covered all Israeli military operations inside Gaza. Every day, she donned her body armor, bid farewell to her son and went to work. Journalism is not and will never be a crime. www.independent.co.uk/news/world/m...
how is it the Australian human rights commissioner is appearing alongside a nazi at this Gold Coast ziojunket? The master’s tools will never dismantle the masters shed. www.deepcutnews.com/p/australian...
transformed the lives of people living with HIV, an effective vaccine is still urgently needed. If the results hold up in larger real-world studies in the community, mRNA vaccines could be a transformative tool in the fight against HIV.
very challenging. The virus expertly evades the immune system by donning disguises, and it mutates rapidly, constantly switching up its look. Ideally, HIV vaccines will trigger the production of elusive broadly neutralizing antibodies, or bNabs- proteins that target relatively immutable bits of the
vaccines are built upon mRNA technology and several triggered potent immune responses in these early tests, while also causing few side effects. Researchers described their new vaccines in a pair of studies published in Science Translational Medicine. It is no secret that crafting an HIV vaccine is
GOOD NEWS! For the FIRST time ever, and after MORE THAN 30 YEARS of HIV vaccine clinical trials, researchers have developed a vaccine that has SUCCESSFULLY generated TIER 2 broadly neutralizing antibodies (bnAbs) against HIV and BLOCKS viral infection in vaccinated PEOPLE.
Online age verification is not like "showing ID to buy alcohol" because a) the liquor store doesn't get to scan your ID and store a digital copy of it forever in a database that will inevitably get hacked b) you don't have to show ID to go to the library because they have cocktail recipe books
every damn housing announcement by MPs should include questions about how the hell this was ever allowed to happen, and what they are going to do now to fix it www.abc.net.au/news/2025-08...
No. No Just no. We do not want guns in Australia and governments should resist the lobbying #AusPol www.theguardian.com/australia-ne...
Repeat after me: A double tap on a hospital is not a "mishap." It is a war crime.
I just found this paper so interesting. A qualitative study of nurses describing emergency room situations. Some "just knew" the patient was in trouble. How did they know? What were they observing? 🧵🧪 www.sciencedirect.com/science/arti...
In an earlier interview, journalist Mariam Abu Daqqa, killed this morning by the Israeli army in the horrific attack on Nasser Medical Complex, shared her fears while documenting the Israeli genocide in Gaza from the very first day.
This is bullshit. The Anglicans are dodging their responsibilities by pretending each diocese is an independent organisation. This is corporate shit, corrupt and wrong. It punishes victims again. As a former student at an Anglican school, fuck those child abusing cunts. #AusPol
We have started the week with a debate on the "Defence Housing Australia Amendment Bill 2025" - a bill that seeks to build public housing for US troops. How on earth can this be Labor's priority this week!?
Aug 22 Fathi update: Fathi was only able to send me a pic today, but that pic is worth 1000 words. It speaks to the unbearable ☀️ & exhaustion of life in 🇵🇸 rn. There’s so much suffering here & yet the shrak bread: it’s a “good” day. - Nicola gofund.me/9b6df8a7 @mommunism.bsky.social #SaveFathi
I lost everything in this genocide, and today my only struggle is to feed my family and cover the simplest living costs. All I ask is your support and hope for my children.🧡 Every share, every contribution — means life for us.🙏
I think it’s safe to say: this is the biggest pro-Palestine rally that this city has ever seen. Brisbane Sanctions and action now @albomp.bsky.social #Auspol #MarchForPalestine #Genocide
It was so big in Melbourne that you could not physically exit the Melbourne central mall onto the street
Australia-wide protests call for sanctions, end to Gaza war — as it happened
The Breeders
What movie has had the most impact on your actual literal life? Not necessarily your favorite, but the one that’s most influenced or shaped something in your trajectory?
We need laws that create a positive duty on manufacturers and retailers to remove slavery from their supply chains. Currently Australia has a National Anti-Slavery Commissioner, but with no enforcement powers and almost no staff, and this is the result www.theguardian.com/law/2025/aug...
They said they’re seeing lots of signs of microhemorrhage, enlarged and shortened vessels etc, and it seems the white blood cells move slower through the vessels. They take photos of all fingers and toes and upload them to software that analyses results in real time.
“In conclusion, for the first time, the investigation shows significant endothelial/microvascular damage induced by SARS-CoV-2 infection in #LongCovid patients, using detailed nailfold videocapillaroscopy scoring of microvascular status from multiple centres” rmdopen.bmj.com/content/11/2...
Hey Australians. Get out to the rally nearest you today. We must show that there are far more Aussies who care about families having dozens of members murdered by a rogue state, who care about hundreds of thousands of dead, catastrophically injured, orphaned, starved *children*. #auspol
(Alt text added) The quote from Deloitte's spokesperson actually made me scoff out loud. For fuck's sake.
Every day I wake up and learn five exciting new ways the government is completely boned re: mutual obligations and usually by the end of the day I can tweet about one of them.
In Australia neo nazi's like to pretend they are pro-worker. Pretending they are some kind of union. Well, here is an actual trade union telling them what's what:
SLC45A4 is a pain gene encoding a neuronal polyamine transporter Here, undertaking a genome-wide association study (GWAS) of chronic pain intensity in the UK Biobank (UKB), we found a significant association between pain intensity and variants mapping to the SLC45A4 gene locus. #Pain #Genetics
Jesus fucking Christ. The idea that any ANY disabled person or family of a disabled person would "game the system" for benefits is an absolute falsehood, it just doesn't fucking happen, to get ANY support is an extraordinary undertaking. Platforming this idea is flagrant propaganda.
More than 100 people with disabilities were chased for debts they did not owe by the National Disability Insurance Agency, which has blamed “poor process and human error” for the bungle. The agency has repaid $145,000 to 26 participants www.theage.com.au/national/ndi...
❤️
Money can't buy respect.... “Many of our farmers and their families and farms are already suffering from net zero ideology,” she said. “They have more than enough to worry about with devastating droughts, floods, fires.” Yeah. That's the point. 🤨 #climaterescue www.theguardian.com/environment/...
Sarah Ferguson mentions the need to clamp down on the fraud in the #NDIS, but fails to mention that said fraud is overwhelmingly perpetrated by service providers, NOT NDIS participants, who end up as much a victim of this fraud as the scheme itself. #AusPol #ABC730
Ben Wyatt Woodside invited to Albo’s Productivity Summit while indigenous campaigner Raelene Cooper has to go to Fed Court to force Ministers to do their job. This is what Albo and Chalmers ‘responsibly’ removing Env regulation to facilitate development looks like. @crikey.com.au
Good on Raelene Cooper taking Fed Govt to court over Plibersek and Watt’s inordinate delay in assessing heritage value of Murujuga. So convenient that Woodside’s approval could be ticked off before the heritage value of the area could be determined. Just like LNP, Labor is owned by Woodside. 🧵
People in their 30s today are the first generation to be worse off than those born in the previous decade in terms of earnings, housing affordability, budget burden and climate impacts www.theguardian.com/commentisfre...
Don’t think it’s just the US who are leading a sustained attack on disability and inclusion: Interim report suggests Queensland opt out of building accessibility requirements www.abc.net.au/news/2025-08...
I’m sharing a Palestinian account every day and today is Majd. Majd is only 17 years old and yet is responsible for helping his whole family including his little brother. Mahmoud, 12 and his two little sisters Mariam, 13 and Hoda, 10. It is a huge amount of responsibility for a kid ❤️
