NHS experience after being diagnosed with ME/CFS, 33.76% described their experience as very poor, poor and mixed experiences were also commonly reported, with 18.39% and 25.52%. Only 5.29% reported good experiences , excellent 1.39% or did not know 0.53%.
"Many respondents (1255, 43.40%) had not seen a specialist in 5 years or longer" "A very small percentage of respondents stated that they had not been seen (78, 2.70%)"
"half of the diagnosed patients (3026, 47.6%) were seen in a hospital-based ME/CFS specialist service. NHS GPs saw most diagnosed (4758, 74.9%) and undiagnosed (177, 63.0%) patients."
