Just changed profile: now 31 years housebound with #severeME (more than half my life) (ill 36.5 years)☹️ Hope research progress is made soon🙏 Links: - A list of research funds: phoenixrising.me/resources-2/... - My story: independent.ie/life/health-... #MyalgicEncephalomyelitis #MEcfs #PwME #CFS
![I've just changed my social media profiles: I have now spent 31 years severely affected/virtually housebound with Myalgic Encephalomyelitis / Chronic Fatigue Syndrome since age 22 (i.e. more than half my life). [I first became ill at age 16, 36.5 years ago, but was initially less severely affected but was undiagnosed]. I'm one of millions around the world. We need more public and private money to make research progress soon, the quicker the better: my life and the lives of others are passing by. For anyone interested, here's a list of some ME/CFS research funds: http://phoenixrising.me/resources-2/research-charities Here's my story as told in the Irish Independent in 2015: 'No one chooses to have ME - everything changed when I became ill' https://www.independent.ie/life/health-wellbeing/health-features/no-one-chooses-to-have-me-everything-changed-when-i-became-ill/34153140.html #MyalgicEncephalomyelitis #MillionsMissing #ChronicFatigueSyndrome #MEcfs #CFS #PwME Photo of a woman in a hospital-type bed #ME ACTION M.E.is a career-ending, life-destroying disability. M.E. impairs patients' abil](https://cdn.bsky.app/img/feed_thumbnail/plain/did:plc:43rudsv62fuwsmnk7oppgtdy/bafkreibgvosqvyxhpqijys2ycam4ukhxuybou5lok57sqjoprbr3jg4d2m@jpeg)
Thanks for sharing! I also got sick at 16, although I didn’t get as severe. Hoping things are changing with research.
38yrs here - but it hasn’t stopped us using our skills, experience+knowledge to contribute to the downfall of the BPS model of #ME May she sink quickly into the mud of history and no longer trouble and traumatise good, well-qualified people who have better things to do than fight bigotry.
