A main User page that tells who they are, their condition. Where they are. Any website. Any Facebook. A flyer Hell, even PayPal lets you write a few paragraphs. There was nothing there. Something to promote. So you don't have to assemble bits and pieces in your head.
A cancer journey is big, developing. BLuesky is obscure. It's a tell there was nothing. That means no page to share or promote or explain. ( But of course there was on Instagram ticktok. )
I'm not on Instagram but edema s is public. Every single page has significantly more information.