I have advice but it's mostly negative 1> if offered "graded exercise therapy" run the other way. People who do this end up permanently bedreddin and without supports. 2> "Lightning process" is a naked scam to trick people into not getting supports, pretending they are not disabled.
3> CBT doesn't do Anything physical , and it's pseudoscience to claim it does Anything (but manage anxiety. ) Unfortunately the British Medical Societies have been colonized by these scams for 40 years. They've renamed old Time Hysteria as
As "Conversion Disorder" and are currently pretending everyone in Britain has a rare Neurological syndrome causing hysterical fatigue or seizures, instead post viral syndromes. It's bullshit, don't believe it, it's another way for them to psychologicize your symptoms.
< Unfortunately I think you are less likely to get proper and additional help with a MECFS diagnosis than LongCovid. It may even give them an entire set of tools to dismiss your symptoms as psychological.
"Conversion Disorder" = "Functional Neurological Disorder" = FND When they mistreat your CFSMe and you permanently lose function, they'll say it's a functional disorder ( instead of post viral damage). You have a active replicating virus in your Astrocytes and Nonocytes. That's structural