being in pain for 6 months but labwork is normal means everything is fine, right? right???
being in pain for 6 months but labwork is normal means everything is fine, right? right???
Waiting to get an ultrasound (my last ultrasound said I had a kidney stone, then I had a CT scan that showed nothing lmao)
looking at goopy insides with soundwaves is an art, i guess
my goop has been imaged they said i will get the results tomorrow which I hope is a sign of good canadian efficiency and not a sign of A Terrible Finding
and my ultrasound is........ normal 🫠 i have a spleen cyst but it hasn't grown and apparently it's too small to be causing my pain but my pain feels an awful lot like the description of pain from a spleen cyst
Baffling to me that this is the only thing they found but they immediately assume this isn't the cause when symptoms line up. What even...?
I'm starting to think you might have some weird version of fibromyalgia.
At least that's where the goop is supposed to be xD
According to my doctor: absolutely, and I never need to see her again
i am in the same boat and it's insanely frustrating :(
Gahh, I'm sorry :( it sucks!!! I hope you can get some answers soon
Was after my visit to Urgent Care but I got as far as a scheduled procedure where they knocked me out before I woke up to them telling me that the thing they were there to correct wasn't there and everything was normal. I am still having the issue on and off literally to this day.
whaaaat that is ridiculous
I love the healthcare system. I am also overdue for a scope to ensure the growths they found in a prior procedure trying to figure out what's up with that haven't turned into cancer since my last sample a few years back and neither the original hospital nor the local one have contacted me at all.
So I don't *officially* have cancer but like, there were cells in my body doing the main mechanism of cancer and just not infecting other nearby cells in the process, and they could mutate into cancer cells, but they hadn't like, 5 years ago, so it's Fine™️ Love it.
If they can't find a cause, hopefully they can treat the pain? It sucks to not be able to be cured, but a little bit better is better than not. Just know that you are not alone in this crappy journey.
One thing I've come to learn is that doctors tend to stop caring as much as long as they have ruled out ways you could die soon. ER stops caring as long as you won't die in the next two weeks. Urgent care about 2 months. PCP in the next couple of years.
*common ways you could die soon if it’s not on the short-list it’s not getting eliminated
You make a great point. Zebras are missed because they're zebras. The system is optimized to help the average patient's average illness.
Sending hugs, that sucks!
getting an HSD diagnosis that helped _explain_ my pain is great, but god does it still suck because now I can just point to a word that explains it but fucking _no one_ is figuring out how to _fix it_ or _why_ it happens -_-