Because he took the time to keep looking. He didn’t just send me for one MRI that showed nothing and say, Well, that’s that, it’s not MS. He knew it was. All the signs were there. I am SO grateful for that man.
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Yeah I think that is where I am, without that magic GP so far. The symptoms are all FUCKING OBVIOUS and everything is terrible. Seeing a neurologist on Monday (actually a PA, not an actual neurologist) so I don’t have high hopes. I just want some relief or help or anything.
jul 12, 2025, 9:42 pm • 2 0 • view
This has been going on for years. I finally had a couple of things that were serious enough that a doc recommend a scan, but it took 6 months to get in, and now I can’t even see the real neuro. I’m fucking over this.
jul 12, 2025, 9:44 pm • 1 0 • view
Anyway thanks for sharing. It’s comforting to know that this is kind of the process, shitty as it is.
jul 12, 2025, 9:47 pm • 1 0 • view
Advocating for yourself when you are sick & tired- literally - is incredibly difficult & depressing. I spent many years just wanting & waiting to die. I can't say shit like HANG IN THERE, IT'LL GET BETTER, because I really can't make that promise. I CAN say you're not alone or crazy.
jul 13, 2025, 6:47 am • 3 0 • view
Not going to lie, I’ve had some pretty dark moments when there seems like no hope & no answers. But I’m still getting up every day and fighting. Tomorrow is my neuro appt. I have pretty low expectations. Managed to write up a list of symptoms & q’s. Anticipating I need to find a better care team.
jul 13, 2025, 5:41 pm • 1 0 • view