Many non-disabled people have an incredibly difficult time grasping the fact that disabled people and those with chronic conditions are not going to “get better.”
Many non-disabled people have an incredibly difficult time grasping the fact that disabled people and those with chronic conditions are not going to “get better.”
THANK YOU
This IS our default setting...
Even a few of my coworkers in an inpatient hospital setting used to ask if I was still sick. Vasculitis, I will have it until I die barring some miracle medical breakthrough. 😞
‘You just need something to look forward to’. 🙄
These people are meeting their own needs and comfort by asking aren’t you better? You look great! They can put it in their mental ‘box’ and move on.
My response is Damn that SUCKS man. Can I do anything to help? Ya need anything? Can you reach that? FFS be human. For me, it's "oh, sorry I'm not limping, or falling down right now, have a nice day" ...
I know and it drives me nuts
A little bit of sarcasm helps people get it, I find. "Oh, I hope you get better soon!" Do you think disabilities/chronic conditions are like having the sniffles? That this shit will just magically go away with rest or medication?
That's because they don't understand, don't want to understand, glad it isn't them, and generally DON'T CARE. But if it happens to someone in their family, or themselves(become disabled), you will hear that they are the ONLY PEOPLE ON EARTH afflicted with this!!!
Yes! And the “you don’t LOOK sick to me.” 🤬
😢
I've gotten the "Get better soon" line too. I suffer from schizophrenia. Many people have tried to shame me for not being able to ignore the visual and audio hallucinations ("Just function normally!). It's not like I can put in earplugs or leave the room. The hallucinations are always there. 🤣
My niece likes to claim she could cured my mental illness with weed. Well, I do use weed. It helps more than some medicines. It's that she thinks she knows what I deal with, that I'm just daydreaming, not hallucinating. Having Crazy in her family is too upsetting to believe my struggle is disabling
Yeah, it goes well beyond daydreaming. The imagery and voices are intrusive.
Since my mother died her voice joined the gang. I will say my mother told me something, others assume I mean something I learned while she was alive. Actually the voice is 100% hers. She appears sometimes. I'm 61, they treat me like an old lady, like it's dementia. If it was I've been demented 45yrs
I'm sorry to hear you're being treated poorly. That must be frustrating. Many of the people I interact with give me the impression that they could handle the illness better than me, if they had Schizophrenia. They have no idea what it's like.
My niece took a few psychology courses 25 yrs ago and thinks she knows more about my illness and medicinal needs than I and my doctors do. She diminishes how bad I struggle because she doesn't think I have MIs. Its frustrating when one of the very few people in my life basically calls me a liar.
That's horrible. No one should be calling you a liar. 😞
It might be fair to say that no one can understand it unless they experience it and as a chronically ill disabled person, I wish this on no one. OK wait, I wish this on Fascists! 💥🙌🏼✨
I've been berated for being on disability. I have fibromyalgia, chronic fatigue & Bipolar2 & BPD. I've been accused of faking it or not trying hard enough to get better. I understand that some are concerned for me, but many are nosey and superior. They ruin my life more than my conditions do.
Feel better Bro Thanks I won't
Or they'll encourage you to "fight it" Yikes.
Fighting back against my immune system until one of us dies