New podcast from Mjff on #relationships with #parkinsons www.michaeljfox.org/podcast/ask-...
ššš Team Snail founder, Clinical Psychologist, Living with #yopd Young Onset #Parkinsons Disease since age 27, dx 2013. #DBS in 2021 & 2024. MJFF Patient Council member, SMC, love lemons www.rebeccamillerphd.com
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New podcast from Mjff on #relationships with #parkinsons www.michaeljfox.org/podcast/ask-...
My latest writing about my experience with #mentalillness and #recovery #psychology #psychiatry academic.oup.com/schizophreni...
My latest- academic.oup.com/schizophreni...
Excited to read this #yopd #parkinsons
The Parkinsonās Foundation is deeply saddened by the passing of music legend Ozzy Osbourne, just weeks after his farewell show. Since his Parkinsonās disease diagnosis in 2019, Osbourne publicly shared his journey and brought greater awareness to the challenges of living with PD. (1/2)
Excited about this paper just published in #movementdisorders clinical practice on demoralization as an underappreciated phenomenon in #parkinsons disease. @drisubramanian.bsky.social Dr. Bradley McDaniels, Dr. Soania Mathur, Dr. Greg Pontone movementdisorders.onlinelibrary.wiley.com/doi/epdf/10....
It is very disconcerting to think that I may be smelling smells again #parkinsons #yopd
Great op-ed to cap off #parkinsons awareness month by @drisubramanian.bsky.social healthydebate.ca/2025/04/topi...
A great FREE offering from @worldpdcongress.bsky.social coming up TOMORROW!
This is a great opportunity to attend the WPC 2026! And the volunteer team is such an amazing group of people. @worldpdcongress.bsky.social
š„ Today for Parkinsonās Awareness Month, watch this short video to learn the basics of Parkinsonās disease:
Thanks for reading the article!
Yes - I closed it and am in the process of analyzing the data. Iāll delete the link in a few but wanted to respond to you first. Iāll post the results when they are published.
It is so challenging - I definitely thought I wouldn't have the same problems, being educated, and advocating, and yet still these problems happened to me...it is a very helpless feeling. We need more systemic change!
Hospital care for people with #parkinsons is a dangerous thing. Read about it here, published by a great org, #womensparkinsonsproject #yopd #hospital #dbs: www.womensparkinsonsproject.com/stories/hosp...
Take a minute to write a thank you to @booker.senate.gov for his bravery in the face of the new administration. Iām especially grateful for him speaking out about Parkinsonās disease, which his father died of. www.booker.senate.gov/contact/writ...
Senator Booker talking about #parkinsons disease during his marathon 25 hour speech yesterday. His dad had #pd Thank you Senator. www.youtube.com/watch?v=BPZj...
Here's an article I was interviewed for: 'Paying it forward with Parkinson's Disease'. www.healthing.ca/parkinsons-d...
@parkinsoncanada.bsky.social added you to the pack!
Today is the first day of April, aka #Parkinsonsdisease awareness month. Ever wondered what it's like to live with #parkinsons? Here's my take, although the experience is constantly changing #yopd #chronicillness www.worldpdcongress.org/home/2025/1/...
On this first day of #Parkinsonsdisease awareness month, posting an article about an important risk for people with #PD to be aware of - contraindicated medications, and one hack to try and avoid them #yopd #parkinsons kevinmd.com/2024/10/the-...
Down with PD awareness! Up up with a cure! I almost thought of that as an April fool's joke (that the cure was here) but seemed excessively cruel...At least April is also Poetry Month here in the US.
It's #Parkinsonsdisease awareness month, no foolin'. Here's an important article talking about #Pd care in the #hospital. Sadly still relevant. #yopd @pfresearchteam.bsky.social kevinmd.com/2022/10/its-...
Happy Unhappy Parkinson's awareness month. One month lasts 12 for me, for the last 12 years since my diagnosis at age 39. April is the cruelest month. visiblemagazine.com/not-your-gra...
Team snail merch - mugs stickers and magnets available Join the slow lifestyle and (bonus) support research to cure #parkinsons Original logo designed by Mala Iqbal www.teepublic.com/t-shirt/2905...
Join Team Snail in NYC on April 26th at the Unity Walk to raise money for Parkinsonās Disease! Join my team and contribute if you can here: give.michaeljfox.org/team/630596 and get snail swag here: www.teepublic.com/t-shirt/2905... - a portion of the sales go to Parkinsonās Research!
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This is a great article by Kevin Kwok pmc.ncbi.nlm.nih.gov/articles/PMC...
Added!
Vote no on cloture
Thank you!
Vote no
Just ordered Slender Threads - looking forward to checking it out!
That is very true, one of the silver linings for sure.
Thank you Frida! Appreciate the offer!
Best. Agenda. Ever. See last item.
Thank you! Much appreciated and I shall take you up on the offer for more questions as I get there. Rejection and tolerance of it seems to be the game for sure.
Thank you, yes very helpful! Iām going to keep chugging away to make sure it is as sparkly as can be before debuting it.
The letter I can do š
Maybe - close but not quite? I have a pretty solid draft but it still needs some adding to. Itās at 50k words. There are some parts that need more writing, probably about 5k more total? Iām not understanding how to find an agent and seems challenging.
I have a solid draft of about 50k words
Thinking of trying to get a memoir published and feeling a bit overwhelmed by the process. Any advice? #memoir #yopd #booksky
Have you thought about the religious message youre sending here? This doesnāt feel particularly inclusive. I canāt support this one.
Protestors skiing with signs to humiliate JD Vance is fantastic
Truth
HEY EVERYONE REMEMBER WHEN TRUMP WAS IMPEACHED FOR DENYING AID TO UKRAINE BECAUSE HE WANTED ZELENSKY TO LIE AND SAY BAD THINGS ABOUT BIDEN AND ZELENKSY WOULDNāT DO IT? Maybe literally one fucking American newspapers could mention this in their, āthink pieces,ā about what happened yesterday.
This is worth watching
Thank you Governor Waltz
Iām hoping not but it seems like most things that horrify the rest of the world are being celebrated by maga. š¤·āāļøThe world feels upside down.
Just read this graf. Share it with people you know who donāt pay attention to politics or news.
Struggling with keeping it together today. Feeling like going out in the street and yelling. This feels very bad.
Maybe true, cause Trump would have supported Putin taking more land from Ukraine.
Proud #pd mom moment #yopd #parkinsons www.worldpdcoalition.org/page/4thcare...
www.sciencealert.com/scientists-t... āFor all of their personality, LLMs have more in common with the predictive text on your phone than the principles that generate knowledge using the squishy grey matter inside our heads.ā
Done!
Welcome, @cureparkinsons.org.uk ! Youāve been added to the pack!!
Thisā¦is how you write a resignation letter. š„ www.nytimes.com/interactive/...
Angry laughing pumpkin man
Iām so sorry
Connecticut's entire federal delegation has written HHS demanding answers about funding disruptions to community health centers in CT. "A threat to health center funding... is a threat to the health of our most vulnerable patients in Connecticut." Letter here: www.murphy.senate.gov/imo/media/do...
www.reddit.com/r/labrats/co...
I think they were saying they were allergic to republicans.
Thank you
grateful for the light, hope, music & humanity Charles Blow brought to these dark discordant neanderthal times. crying with sadness and with profound appreciation. farewell to the NY Times, indeed.
I think this is my favourite report cover of all time. Any others?
The world's richest man is taking food and medicine from the world's poorest children www.nytimes.com/2025/02/05/o...
Found out that TWENTY emails is considered a lot to politicians on an issue. TWENTY. As in, they call that getting slammed. So next time you see a request to email your rep, or call, keep that in mind. TWENTY is a lot.
In support of federal employees š„š„š„š„š„
This must be read. By every person who cares about the hijacking of this nation. By every Democrat in Congress. @democrats-judiciary.house.gov Thank you @jamellebouie.net. www.nytimes.com/2025/02/05/o...
My latest blog post with one of my favorite organizations @worldpdcongress.bsky.social about living with #yopd #parkinsonsdisease www.worldpdcongress.org/home/2025/1/...
Two paths diverged in the woods and America took the psychopath.
Disappointing results www.nytimes.com/2025/02/04/h...
My mentor has called me every 3 months for the last 10y. Heās not warm and fuzzy - being an engineer and a horse person - but his unwavering vision of my potential changed how I think of myself. And his calls have occasionally made the difference between soldiering on and folding up.
Orwellian www.nytimes.com/live/2025/02...
Very true differentiating the how from the what - I worry that I wouldn't care if the changes were in line with my values. Important for perspective taking I think. Doesn't change my level of outrage currently though.
Interesting: citizenshandbook.org/arnsteinslad...
Mon dieu alors
Please Participate If You Can. Kindly Repost! šš
"I wish it need not have happened in my time," said Frodo. "So do I," said Gandalf, "and so do all who live to see such times. But that is not for them to decide. All we have to decide is what to do with the time that is given us."
Proud that this is my senator.
Okay, I cannot recommend 5calls.org enough. Enter your address and it will find all your reps (federal and state). AND give you a list of issues to call about AND which reps to call about each of them AND a little script for each, in case it's helpful. They have an app, too.
āMake no mistake, whatās happening right now is a hostile takeover of the federal government by a private agency operating with a broad mandate and no concerns for the stability of the United States or the interests of the average American.ā Alexander Vindman open.substack.com/pub/alexande...
Reuters: Musk aides lock workers out of OPM computer systems www.reuters.com/world/us/mus...
The logic of the coup that is going on now. And how to resist it. snyder.substack.com/p/the-logic-...
I just donāt understand.
This
Go Pete.
No words www.nytimes.com/live/2025/01...
Glad to hear sheās ok!
Donāt forget people with disabilities too
And so offensive, blaming people with disabilities for this? Shame.
Interesting article about gender differences in DBS decision making #yopd #womenwithPD #parkinsons movementdisorders.onlinelibrary.wiley.com/doi/10.1002/...
Great article #medsky www.huffpost.com/entry/doctor...
Hark! Something is happening
This is great
What is this?
This is interesting. Contact your representatives now.