"Of the participants with ME/CFS or long COVID, a subset (n=791) reported both conditions." "83.4% (6053) of these respondents were female, 14.9% (1077) were male and 1.8% (129) were non-binary or preferred to self-describe."
Replies
NHS experience after being diagnosed with ME/CFS, 33.76% described their experience as very poor, poor and mixed experiences were also commonly reported, with 18.39% and 25.52%. Only 5.29% reported good experiences , excellent 1.39% or did not know 0.53%.
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"Many respondents (1255, 43.40%) had not seen a specialist in 5 years or longer" "A very small percentage of respondents stated that they had not been seen (78, 2.70%)"
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"half of the diagnosed patients (3026, 47.6%) were seen in a hospital-based ME/CFS specialist service. NHS GPs saw most diagnosed (4758, 74.9%) and undiagnosed (177, 63.0%) patients."
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