Yeah, my doctor was like "we don't usually *celebrate* results like this, but in this case..." I have to treat it pretty much 100% with drugs and not diet because I am allergic to fucking EVERYTHING and my diet is so limited to begin with that if I tried to cut out carbs and sugar I'd starve!

I do what I can, we both try our best, but when I'm in a bad MCAS flare I can basically eat like five things and they're all really bad for blood glucose, sigh.

I get that.. I'm "lucky" enough that I only really have to deal with one thing to balance (blood sugar/insulin ratio) but even that gets really complicated really fast, and we mostly kinda understand it!

I'm trying to figure this out, are you prediabetic or type 2? My pancreas decided to say "fuck you" this spring, and I suppose I'm really glad my gsstro doubled the sodium cromiglicate around then, because learning to use insulin *and* dodging tomatoes would have been hellish.

Previously it was pre-diabetes because we put me on the Trulicity when I hit 6.4, but they now want the 6.5 that's the threshold for diagnosing T2. So they made me trigger Actual Type II instead of "almost there but not quite", heh

I gather the border is pretty vague anyway, and that prediabetes is pretty much diabetes. But that's still extremely shit. I think there are similar issues with the NHS not wanting to prescribe unless your BMI is over 35, and presumably some people deliberately put on weight for that purpose.

On the other hand, I suspect the trigger was when the gastro told me to come off my antihistamines "to check it's really MCAS" in January. I only stopped the fexofenadine, and had three allergic reactions in one week. Type 1 diabetes is often triggered by some sort of trauma, including viruses etc.

also fuuuuuuuck that doctor in the ear, seriously

He's the only one who'll give me MCAS meds at all. There are no MCAS specialists in Scotland.

So fucking infuriating :/

Yeah I don't remember it but my mom is pretty sure that I had a very bad cold that triggered my type 1, the timeline matches and I've heard similar.

Interesting, any chance it was flu? I didn't know colds could be that vicious! I got ME/CFS triggered by flu in 1997.

It's definitely possible! I don't *think* she tested me and it wasn't ever anything severe, just like a couple days of feeling sick. I was 5 at the time so I have no memory of it at all. A few months later I was in the hospital with a blood sugar of 500+

Oof. Mine was about 340. The GPs were trying to blow me off, but I've been disabled for 27 years and knew to seek out community. The diabetes server yelled at me to go into hospital before it turned into DKA, thankfully.