I only use it for a support group of other patients with the rare genetic disease I have. I’ve gotten great information that way that I’ve been able to share with my doctor. I hate to lose this valuable resource.
Replies
That's exactly the challenge, there is this tiny shred of good stuff, amidst a whole pile of soul sucking noise and dross.
jan 8, 2025, 1:42 am • 23 0 • view
One way out of the FB dilemma might be to ignore the "clickbait" content and to ignore & shame the advertisers. If you use Firefox, Privacy Badger may help reduce Meta's ability to watch your usage & steal data from you. privacybadger.org
jan 8, 2025, 8:57 pm • 5 1 • view
We could also ask people for alternatives, or suggest them to them -- when somebody asks if they can find you on X or WhatsApp, say "no" and if you're up for it say why. Or if the suggest you take a look at their Instagram, explain why you won't and ask where else the post their work.
jan 9, 2025, 3:46 am • 1 0 • view
So: who’s willing or able to jettison their Facebook, Instagram.. Amazon shopping.. Prime Video? Whole Foods. www.theverge.com/2025/1/3/243...
jan 8, 2025, 2:20 am • 10 3 • view
Ugh
jan 8, 2025, 2:59 am • 1 0 • view
Completely done with Amazon & good riddance. Will miss some of the drivers, they seemed to be decent folk as they rushed about the neighborhood. Since quitting I've been discovering that Amazon is rarely the best price, and the Prime "free shipping" is anything but.
jan 8, 2025, 4:36 am • 2 0 • view
I figure I'll keep my FB account for a while longer & use it to try to convince folks to find other platforms.
jan 8, 2025, 4:36 am • 1 0 • view
🤮
jan 8, 2025, 4:26 am • 0 0 • view
Whole foods has sucked since Amazon bought it. Small, boutique stores are doing it for me
jan 8, 2025, 2:28 am • 10 0 • view
I know eh? I can do without insta. I don't engage and rarely look at fb but I have it, small town..I'm getting rid of Prime video np.
jan 8, 2025, 2:26 am • 5 0 • view
I was able to cancl my insta today. Required a bit o footwork- I’m no tech savant : ( mostly used insta to check out work of some artists. I will miss that. The stink is everywhere, yes ?
jan 8, 2025, 2:40 am • 6 0 • view
Reach out to the artists if you can, ask them where you can see their work now that Instagram is toxic, might help to get a few more folks to bail.
jan 8, 2025, 4:38 am • 3 0 • view
Great suggestion. Thank you.
jan 8, 2025, 4:58 am • 0 0 • view
Use Pixelfed.
jan 8, 2025, 8:51 am • 1 0 • view
We need a “groups” section on bluesky. Also Discord is a great app for groups
jan 8, 2025, 4:26 am • 1 0 • view
Yup that’s an issue I have as well since I’m in a state where not too many docs are familiar with a few of the health problems I have.
jan 8, 2025, 3:25 am • 1 0 • view
Honestly, some of the private groups are invaluable. I left X, I rarely use Instagram, and I'm on Facebook and Threads less and less, but I'm reluctant to give up Facebook entirely. I use Facebook Messenger A LOT. Rich people own things and make decisions based on getting richer. Reality sucks.
jan 8, 2025, 6:37 pm • 1 0 • view
Is there a subreddit for the disease? I swear the health and “beauty” groups on there are very welcoming and helpful. It’s not all angry Star Wars bros.
jan 8, 2025, 7:00 pm • 1 0 • view