Pain and fatigue remain high and the brain fog is awful. I can’t concentrate at all. I can’t write. I’ve stumbled through some admin, which I’ve really struggled with. If it takes more than 5 minutes to do, I’m losing track if what I’m doing.
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On top of fibromyalgia, I’m currently going through medical tests for what looks an awful lot like POTS (www.potsuk.org if you’re interested in what that is). This week, my heart rate has been elevated a lot of the time, leading to lightheadedness, nausea, cold sweats and trembling.
sep 12, 2025, 9:26 am • 2 0 • view
My relatively healthy son bounced back after 5 days. Two weeks on, and I’m still struggling. When I get a virus, it causes my other conditions to flare and it takes me much longer to recover than a healthy person.
sep 12, 2025, 9:26 am • 2 0 • view
I am sitting here now, writing this, with a to-do list as long as my arm, and a book I’m really excited about writing, all waiting for me. But actually getting to work on any of it feels like an impossible mountain to climb
sep 12, 2025, 9:26 am • 3 0 • view
Ugh yes, this. Also POTS is comorbid with so many autoimmune diseases and chronic illnesses, so won't be surprised to hear a positive diagnosis. Many hugs your way
sep 12, 2025, 4:52 pm • 1 0 • view