5/ Think about your life goals. Think about your kids. Who takes care of them if you become chronically ill, bed-bound, or gone?
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As someone who has been struggling with long covid for over 5 years already I can promise everyone ypu don’t want it. It was so early on I had no idea what was happening. As bad as the physical issues long covid causes, it’s the mental and neuro issues that destroys you.
aug 28, 2025, 5:55 am • 1 0 • view
Losing your mental toughness is devastating. You can get upset over the smallest things that doesn’t matter, you know it doesn’t matter but freak out anyway. Many of us experience when we need to do something, the more we push ourselves, the more we gut it out the longer it takes to recover.
aug 28, 2025, 5:55 am • 1 0 • view
Absolutely. Any task I have to willpower my way into doing is one I will pay for with PEM. I’ve hired what help I can so there’s a chance I can minimize how many “willpower tasks” on the critical path need to be done by me.
aug 31, 2025, 6:04 am • 2 1 • view
A lot of us with long covid has that I started using delivery when I need heavier stuff. Looking for a laundry service that picks up and drops off and have someone coming in once week to clean up. My heart my will and refuse to lose was my edge and it’s really tough I have to take it easy now
aug 31, 2025, 6:14 am • 1 0 • view
I have a weekly assistant for home tasks who picks up what I can’t ezsily find specialists for Every time I see someone proclaiming we just need to try harder I 🤬 The trick is getting any of us to be ok with doing less! We’re every last one of us wanting to do more!
aug 31, 2025, 6:32 am • 1 0 • view
It has taken me years to allow myself to rest without beating myself up about it.
aug 31, 2025, 6:32 am • 1 0 • view
I’m the same way
aug 31, 2025, 8:11 am • 1 0 • view
6/ We are in another major wave — even if the news isn’t reporting it. You might not test. You might shrug it off. But sooner or later, one infection will leave its mark. I guarantee it.
aug 27, 2025, 12:15 am • 186 41 • view
7/ I’m saying this because I want you around. I want you healthy. I want my friends, colleagues, and family to take this seriously before it’s too late.
aug 27, 2025, 12:15 am • 174 30 • view
8/ Clean air. Masks. Precautions. These aren’t inconveniences. They are the line between staying whole and watching your health slip away, wave by wave.
aug 27, 2025, 12:15 am • 195 42 • view
9/ My wife is on her very first infection — after 5+ years of us never eating indoors, never taking chances. And even then, it found its way in. That’s how relentless this virus is.
aug 27, 2025, 12:15 am • 193 24 • view
How do you think she got it?
aug 27, 2025, 1:26 am • 2 0 • view
10/ Here’s the truth: – Every breath indoors without protection is a coin flip. – By 2030, the question won’t be who masked. It will be who’s still standing. – It’s not paranoia. It’s prevention.
aug 27, 2025, 12:15 am • 203 40 • view
11/ Mask. Filter. Ventilate. Test. Repeat. It’s not complicated. It’s survival.
aug 27, 2025, 12:15 am • 208 42 • view
Thank you for this. I've spent all of 2023 with my late wife as we fought cancer…usually the only people in a respirator. You would think medical professionals would know to protect themselves. @flomask.bsky.social is my favorite respirator. Use code FAMILYFIRST for 25% off.
aug 27, 2025, 2:42 pm • 9 0 • view
By the way, I modified our Flomasks with the @sipmask.bsky.social port so we could drink. I highly recommend this modification if you have to fly. When I had to acknowledge that Vickie was never leaving the hospital, I gave her mask to, Sarah, my favorite of her nurses.
aug 27, 2025, 2:53 pm • 3 0 • view
Nurse Sarah is a genuine angel of mercy, exactly the person you would most wish was caring for your loved one. She was the first person in Kansas City to get the covid vaccine, and had to delete all for social media accounts due to abuse. youtu.be/mtggyV8qleo?...
aug 27, 2025, 3:40 pm • 1 0 • view
Getting medical care in KC, i know how rare medical pros like her are.
aug 31, 2025, 5:57 am • 0 0 • view
Thank you for all this truth and also for emphasizing respirators. (I don't say masks, so there's no confusion with baggy blue surgical masks, not fit for anything airborne). I'm sick and fucking tired of messages that are like "New wave, get your boosters!" 😖
aug 27, 2025, 3:17 am • 26 1 • view
Sadly we won’t even have boosters moving forward in the states.
aug 27, 2025, 1:00 pm • 9 0 • view
My last Covid vaxx was in 2023 because it isn't worth it to have to go out into plague spreading world into a clinic full of maskless nurses for an ineffective, strain outdated vaccine that doesn't stop infection or transmission. I have completely avoided Covid by not inhaling it. Respirators, home
aug 27, 2025, 1:42 pm • 7 2 • view
Staying home. Not fucking eating inside of restaurants. Wearing my airtight elastomeric respirator at all times in public, whether indoors or outdoors, whether "crowded" or "empty." My bulletproof Covid avoidance strategy. 🔥🔥🔥 When my parents were youth, smallpox, polio vaccines actually worked! 🧵
aug 27, 2025, 1:45 pm • 11 2 • view
Thank you for the master class in 11 simple comments.
aug 27, 2025, 12:32 am • 13 0 • view
Well said. The way that I see it is that even delaying those infections and the frequency of them--that actually probably does have some benefit & when it's once in 5 years as opposed to 1-2 times a year, that's a lot less rolls of the dice & time to heal between.
aug 27, 2025, 4:57 am • 6 0 • view
Even protection isn't always enough. I was masked and recently vaccinated and got it for the first time this month. I'm glad I kept it at bay for this long, but it's so frustrating. Like, I did everything right and still got it.
aug 27, 2025, 5:03 am • 9 0 • view
It's a spin of Russian Roulette.
aug 29, 2025, 10:32 pm • 0 0 • view
Common precautions, but I’d add, if your sick stay home! Stop the spread!
aug 27, 2025, 11:24 am • 6 1 • view
+to that id add: about half to 2/3 of spread comes from ppl who have no symptoms at all. so yes definitely if u feel sick, stay home... but also, wear a mask whenever out not just for self-protection but bc u may be contagious +not know it!
aug 27, 2025, 12:10 pm • 3 0 • view
I don't know if you've seen the research about azelastine nasal spray and chlorphenhydramine to reduce the risk of long COVID?
aug 27, 2025, 1:03 am • 3 0 • view
aug 27, 2025, 1:09 am • 2 0 • view
Too bad that isn’t what’s actually happening. I’m taking paxlovid right now 😔
aug 27, 2025, 6:00 am • 1 0 • view
If there's an azelastine nasal spray OTC option, maybe add it to what you're already taking?
aug 27, 2025, 6:08 am • 1 0 • view
It’s an antihistamine, not an antiviral. If you take Paxlovid, be careful about adding meds. Geez.
aug 27, 2025, 10:41 am • 1 0 • view
Hubby and I went 5+ years too. Then this past June we went to my Grandson's graduation, with all the excitement we forgot our masks for the very first time. 4 days later we both had Covid, just like that. Even though we are both fully vaxed it hit us really hard. Mask up peeps.
aug 27, 2025, 1:21 pm • 0 0 • view
Yep. my wife and I are just now going through our very first COVID infection -- fully vaccinated every six months for five years. We knew there was an uptick in infections, but the media has utterly failed to inform the public of the current dangers we face.
aug 27, 2025, 2:46 pm • 2 0 • view
I would like to add nasal sprays to the list of tools.
aug 27, 2025, 1:25 pm • 0 0 • view
I became convinced pretty quickly that no one fully recovers from this
aug 27, 2025, 12:26 am • 5 0 • view
Sobering. I guess I take care of them because I’m the only one in my extended family who has not had Covid. I had every vaccination instead with no side effects.
aug 27, 2025, 12:18 am • 3 0 • view