avatar
Jody N. @jojon60.bsky.social

I have had a chronic pain condition in my pelvic floor muscles for over 15 years. I can't tell you how hard it has been to get a doctor to listen to me. The first doctors I saw said it was anxiety and depression. I can't tell you what a relief it was to find out I wasn't crazy.

jun 30, 2025, 4:17 pm • 19 0

Replies

avatar
shoutletitallout.bsky.social @shoutletitallout.bsky.social

I am so sorry you've dealt with this! Doctors are still of the mindset with women having any type of issue it goes right back to our emotions and "anxiety and depression." It is archaic!

jun 30, 2025, 4:35 pm • 9 0 • view
avatar
Jody N. @jojon60.bsky.social

Having this changed my life. I still don't really understand how it happened or why it won't go away. I have had multiple doctors and treatments. My heart goes out to anyone who has a chronic condition.

jun 30, 2025, 4:45 pm • 3 0 • view
avatar
Rick Downer @rkdowner.bsky.social

My wife has fibromyalgia and it took years to get a diagnosis. She has a number of paying issues including scoliosis and after years of trying different things she's found methadone is the only thing that works.

jun 30, 2025, 7:32 pm • 5 0 • view
avatar
Rick Downer @rkdowner.bsky.social

Good grief. pain issues, not paying issues. I need to fire my proofreader, he sucks.

jun 30, 2025, 8:48 pm • 0 0 • view
avatar
Kathy Kerrigan @funred1.bsky.social

It was easy to know what you meant!

jun 30, 2025, 8:54 pm • 1 0 • view
avatar
Rick Downer @rkdowner.bsky.social

Every 6 months she has to have the doctor justify it to the insurance, so she goes a few days without. She can only get 28 days at a time, on day 29. Impossible to have a buffer. It limits our vacation planning.

jun 30, 2025, 7:33 pm • 6 0 • view
avatar
Jody N. @jojon60.bsky.social

That's just not right. She shouldn't have to go without the medication she needs. A few years ago I was taking a couple of different medications together. Then the government said I couldn't take both. Needless to say losing one didn't help my pain situation.

jul 2, 2025, 10:06 am • 1 0 • view
avatar
Jody N. @jojon60.bsky.social

I wish some of these doctors and government officials had to live how I live for a few days. They would change their tune quickly. It has been mostly men making decisions about my damn healthcare.

jul 2, 2025, 10:07 am • 2 0 • view
avatar
Rick Downer @rkdowner.bsky.social

It's non-doctors and non-pharmacists insurance employees whose JOB is to DENY CARE who make our decisions. I hope every insurance CEO lives in constant fear, because that's how they make us live.

jul 2, 2025, 3:44 pm • 1 0 • view
avatar
Rick Downer @rkdowner.bsky.social

I understand restrictions because it's a controlled substance, but with every other med you get to have a few days buffer. With this one a few days deficit every six months. Can't get it without insurance approval, can't pay cash in the meantime without losing coverage altogether.

jul 2, 2025, 3:40 pm • 1 0 • view
avatar
shoutletitallout.bsky.social @shoutletitallout.bsky.social

Possibly look into and work with her Dr for an early refill due to "travel." Even if it's just 1-2 weeks' worth, it will give a bit of a buffer for her to not go without. I refill my RXs ASAP whether or not I need it so I can build up a small back supply, but I know that doesn't work for everyone.

jul 2, 2025, 3:48 pm • 1 0 • view
avatar
Rick Downer @rkdowner.bsky.social

Not possible with federally controlled medications. Like I said, she gets a 28-day supply on day 29. Absolutely no sooner than she needs it. They're afraid she's going to sell them on the street even though the pain makes her suicidal without it.

jul 2, 2025, 5:29 pm • 1 0 • view
avatar
Jody N. @jojon60.bsky.social

This has happened to me too. I can understand some of their concerns about selling drugs or suicide. But if the person has been taking a medication for a long time that should get you some leeway. Plus, you're talking about one pill. I know it's frustrating.

jul 2, 2025, 11:52 pm • 1 0 • view
avatar
Rick Downer @rkdowner.bsky.social

It's the fact that she's been taking it for so long that makes them question whether she needs it. It's a medication they have on their short time list not their chronic list. So every 6 months the doctor has to justify it even though she's on a pain management plan.

jul 3, 2025, 1:21 am • 1 0 • view
avatar
Fasten your seatbelts. It’s going to be a bumpy ride. @mirimg.bsky.social

😢

jun 30, 2025, 5:53 pm • 3 0 • view