Universal health care đ«¶đ»
person with ME/CFS professional slug
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Universal health care đ«¶đ»
Going hard with the dystopian imagery this morning edmonton.citynews.ca/2025/09/01/a...
Canada needs this as well. Just like what RFK is doing in the US, "gaps in public messaging" are a deliberate choice - they don't just happen. So...who benefits from misleading the public? Pretending away the massive toll of letting COVID rip are all about protecting a few negligent insiders.
Theyâre speculating about what might have happened to Trump
Iâm happy for the info, itâs nice to see with so much scaling back of vaccines right now.
Thatâs good news! Iâm not in the UK, but I should probably get it.
Itâs a less bad one, but Iâm jealous of the kids getting chicken pox vaccines now because I live in fear of shingles.
To this day, many articles assert that we didnât have the technology to research ME/CFS in the past. Itâs just not true.
Wow would I love it for The New Yorker to pay me or literally any other disability scholar to write about the connection between eugenics and fascism! You know, the connection that disabled folks have been talking about for decades? That one
Feels perverse
As they should be!
Iâd add that if masking is tough on your mental health, you do not want ANY part of the restrictions on your life and coping mechanisms that a new chronic physical illness might impose. I used to rely heavily on exercise for mood. Now I canât even go for a walk. And thatâs the tip of the iceberg.
Iâve seen a lot of about how itâs not a ban because you can still buy them. Or get them at the public library.
Why bother with a menstrual blood test when we can just cut you open instead?! #endometriosis www.science.org/content/arti...
"PEM warrants recognition as a neurological pathology resulting from metabolic and immune dysregulation (3). Approximately 48 hr after a triggering eventâphysical, cognitive, or emotionalâpatients experience what is colloquially termed a âcrash.â" www.bmj.com/content/390/...
Iâve had some failures too. I seem to have worn down the people I speak to the most.
Iâve convinced a couple people to mask at least some of the time and yeah I wasnât mean about it.
Post-COVID? This article must be from the future. www.cbc.ca/news/politic...
These articles all act like people stopped getting covid in the last couple years and like long covid hasnât continued to be a huge problem in children.
Oof writing fail
As a disabled person whoâll have to be unmasked for a procedure in 2 weeks, Iâd be so grateful if folks who donât usually mask considered pitching in to help curb this surge. N95s work best but if what youâve got is cloth, popping it on to go into the grocery store is way better than nothing! Ty<3
Totally stuck - from my ME/CFS photo project glass.photo/andrewgiffor... ALT: colour photo of a beautiful black and silver butterfly, trapped inside a class paperweight, on a drab blue background #MECFS #pwME #LongCovid #Photography
It was always an extremely bizarre proposition that it would be worth it to have children dying en masse in order to avoid autism. And since vaccines donât cause autism, it makes even less sense.
From Apr 2023 to Mar 2024 in đšđŠ, "There were more than 94,600 ED visits reported for patients with a diagnosis of COVID-19." This is unsustainable, yet we have created a perpetual COVID generating machine via throttling boosters and lack of airborne mitigations. www.cihi.ca/en/nacrs-eme...
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The idea that doctors would have time to talk about nutrition seems pretty silly to me. I hired a dietitian this year and the appointments were each an hour long.
Iâve convinced a couple people to mask some of the time. Donât know how consistent they are.
It doesnât help that media articles almost never show proper respirators. Itâs mostly surgicals.
If you are angry, as you should be, that restricting access to the vaccine will make covid worse and more dangerous, please start wearing a mask, which actually does a significantly better job of preventing transmission in the first place.
ADHD and Autism do seem like a brutal combination with ME/CFS. Seems like it would be like getting pulled in opposite directions.
For a while I had almost daily tension headaches, which I think really lowered my baseline. These were resolved by getting braces. Although getting braces also lowered my baseline.
I am someone who has to hold myself back. Not once have I ever done too little. Itâs probably the reason I slid from mild to severe #MECFS over the past 5 years. What she claims she believes here is not what I saw her do in my appointment.
Our medical establishment believes in bodily autonomy and medical freedom for raw milk, not vaccines. sciencebasedmedicine.org/rawmilk/
this is a good article, but, to be clear, at the time, #ME/CFS patients *did* anticipate long covid. unfortunately, the medical community dismissed and ignored them, like theyâve done for decades
I donât think itâs real. Or at least itâs not from the CPC.
Can we stop call certain conditions mysterious while weâre at it? Weâre always just describing a lack of research.
Telehealth is the only way I can reliably access healthcare without making my health worse. If you have the energy, please contact Congress and ask them to extend Telehealth.
health mis&disinformation was my catalyst to seeing how dire our situation truly isâwhat do you have if not your health? & then what, when your hard fought for health can be destroyed in days with only weak data for political points? what happened to autoimmune people should be been a wake up call.
Iâm very concerned about how they ordered fewer doses than were used last year. Sounds like theyâre planning on the tax reducing demand.
I donât know why Danielle Smith thinks she can get away with these huge lies. #axethevaxtax
Thereâs no conversation Iâm willing to have with people spouting lies around the COVID vaccine Not only am I an epidemiologist who SPECIALIZES in infectious diseases, but my 31 y/o brother thought COVID was bullshit too until it put him in a coma for a week before killing him.
Health misinformation and disinformation are the biggest and most under prioritized threats to public health in the 21st century. They are eroding decades of progress in the control and spread of diseases in real time. If we do not address this like the existential threat it is, we risk everything!
In a small town in County Cork, Ireland, a monument stands in appreciation to the American Choctaw Indian Tribe. Although impoverished, shortly after being forced to walk the Trail of Tears, the tribe somehow gathered $170 to send to Ireland for famine relief in 1847 [Historic Vids]
Itâs bizarre there isnât more support for cleaner air.
Sussex children deserve clean air in their classroom From scrubs to schools â indoor air quality is an education issue | Nathalie Pearson @sussexbylines.co.uk
9/ If you donât understand long-term sequelae but insist the pandemic is âoverââcongrats, youâre doing PR for the virus.
Our kids donât have to get as sick this year as they did last year. Neither do teachers and staff. Letâs put our thinking caps on this school year and make a concerted effort to reap the benefits of effective infection control.
The chosen picture is very funny.
The problems with ME/CFS arenât just an exception in medicine. They pervade much of it. Common knowledge, can be, and often is, wrong. As a recent example, âThe brain rewires after amputationâ, written in every neurology textbook. This informed care for post-amputation patients. (1/2)
I think about this a lot with my chronically ill peers. Thereâs a lot of support on social media and I remember being chronically ill before social media took off and it was worse back then. But then thereâs yeah just these dickheads who show up too.
âA growing number of scientists believe the SARS-CoV-2 virus may be subtly altering our immune systems. If correct, their hypothesis will change how we understand everything from RSV to shingles to sepsis.â âItâs certainly impacting our immune health & probably.. overall healthâ
Powerful and important work by Jeremy Jeffs, capturing life with severe ME. Upcoming exhibition â âLives We Cannot Live,â Oxo Tower Gallery, London, 24â28 Sept. Give him a follow or subscribe for updates on his upcoming book. mailchi.mp/16f8611232cc...
Why on earth do this retrospectives completely ignore #longCOVID and the growing science of how bad COVID is for everyone? Gave up halfway through it. podcasts.apple.com/ca/podcast/t...
I think pretending the pandemic ended has actually been a big driver of MAHA. Itâs what the alt right wanted.
The headline we need: âThat Annoying Cold May Be COVID-19â
Oh and btw COVID is the reason Iâm so functionally disabled right now. It made me housebound.
Iâm disabled and no way can I go to BC for a vaccine.
Alberta is the only province charging for COVID vaccines. Thatâs wrong. Vaccines must be free for all Albertans. #ABHealth #ABLeg #ABPoli
Another person I know is having a terrible time with shingles. Feeling jealous of the kids who got the chicken pox vaccine.
Very bizarre to not make this a priority.
Make my own choice? Wish I could, Canada
All good ideas, but itâs so weird when respirators arenât mentioned as a possibility, not even in specific situations.
I spent $400 today & yesterday bc a nurse gave me the WRONG fluids that I was allergic to. She still charged me âfor her timeâ and for having to come fix it today. If youâd like to help me recoup the funds so that I can pay for caregiving next week Iâd appreciate it www.gofundme.com/f/help-vs-me...
Itâs COVID & yes, you should start masking again You donât have a âmystery illness.â Itâs COVID. Itâs not âthe normal pains of turning 30.â Itâs Long COVID. This generation isnât just âmore poorly behaved.â COVID is literally damaging kidsâ brains. The pandemic didnât âend.â ...continues in ALT
Really underselling why people want the Novavax vaccine though, itâs not just for âMRNA skepticsâ, it has fewer side effects, especially for some medical conditions.
Who wouldâve thought the vast majority of Americans would go anti-science in such a relatively short time? And by anti-science, I donât mean only the people who are antivaxx, but also those who think COVID is mild and doesnât have long term effects. Disconcerting times.
#MECFS #LongCOVID
Alberta is the only Canadian province that will not provide free universal access to COVID-19 vaccines this fall. Alberta leads the continent on measles cases- far surpassing the entire United States. Now we are headed in similar direction with COVID. A UCP government that spreads misinformation
Thanks for sharing! I also got sick at 16, although I didnât get as severe. Hoping things are changing with research.
Teen Vogue doing better science comms than most public health orgs
Even if it were true, the underlying argument is that âitâs worth it for me to have a shorter wait time, even if that means other people canât access healthcare at allâ. Sounds bad when you say it out loud.
Yeah long Covid is also not usually framed as something that causes death either.
I had the same note about the omission of long covid. In a pretty thorough article, it felt likely intentional.
Lol who could have seen this coming
Thanks
I have the same question as other people. Is there a reason theyâre not sharing the name of the drug
Keep up the pressure folks!
I had ME/CFS for at least 10 years before I had any idea how bad it could get. And I only really learnt this from social media.
I have two audiobooks that I listen to again and again: 1. Emily Wilsonâs translation of the Illiad 2. The Earthsea Cycle by Ursula K Leguin
Outstanding article on covidâs impact on our immunity. We need to confront this emerging truth and stop this harm to all humanity. @nicktsergas.ca @senatorpaulasimons.bsky.social @senpatrickbrazeau.bsky.social @jmeddings.bsky.social @snyderinstitute.bsky.social www.bmj.com/content/390/...
I thought it was an onion headline. I canât tell whatâs real anymore
I have two audiobooks that I listen to again and again: 1. Emily Wilsonâs translation of the Illiad 2. The Earthsea Cycle by Ursula K Leguin
I donât think the tubercular look ever went away
Powerful closing remarks from PLRC co-founder @ahandvanish.bsky.social at the Keystone Symposia on #LongCovid last week, reflecting on the state of research & the journey of the patient community: "In our immediate presence, time slows, while the world beyond speeds up & moves without usâ
Aside from the present, my understanding is that scientists knew in the 40s and 50s that cigarettes caused lung cancer and that tobacco companies essentially ran a propaganda campaign. I think thatâs a lot like how alt right health works right now.
Even my dentist office has texting, which is a lot easier for me. Probably easier to manage as a receptionist too.
The episode ends just noting how exciting it is to be having so many IACC clinical trials going on right now. I totally agree, itâs a very promising new era.
Thatâs terrible
Iâm a a but surprised at how happy he seems, like he wasnât sure it was going to go this way.
I agree pairing endemic with back to normal never made sense to me. And I think thatâs what these articles are really insisting onâweâre still in the back to normal phase, even if itâs going badly.
How much longer will #pwME be left to starve to death because the medical establishment thinks it is too risky to provide tube feeding to someone who cannot sit up? This is exactly how Maeve died. When will governments FORCE medical systems to treat #ME/CFS properly? #GreatestMEdicalScandal
A Dutch #pwME urgently needs TPN (Total Parenteral Nutrition) because she has gastroparesis and cannot tolerate food or any other form of tube feeding. But the hospital refuses, saying they donât provide this to pw ME. Is there anyone in the international community who can help?
It is both astonishing and appalling that so many millions of people prefer suffering the extreme, irreparable, life-threatening harm of Covid-19 to wearing a respirator mask. #COVID19 #respirator
The weirdest part is some of those people even think it was a bioweapon.
Sometimes I wonder why I put off making medical appointments. Then I spend at least 20 minutes on hold then feel very rushed picking a time. Just making the appointment is exhausting.
Yeah, exactly.
Another example is this bizarre line from Vox: www.vox.com/future-perfe...